May is Ehlers Danlos Syndrome (EDS) Awareness Month, and since 1 in 3100-5000 people are affected by hypermobile EDS… let’s talk about it.
So, what exactly is EDS?
EDS encompasses 13 different connective tissue disorders caused by genetic defects in collagen. The most common disorder seen in clinic is hypermobile EDS as it accounts for 90% of EDS cases. This involves joint hypermobility which often leads to instability and therefore an increase in injuries. Diagnosis of hypermobile EDS is made clinically via physiotherapists or doctors.
What does hypermobility mean?
Often referred to as ‘double-jointed’, people with hypermobile joints mean that their joints move beyond what is considered ‘typical’ range of motion.
Symptoms of hypermobile EDS
- Joint issues such as hypermobility leading to frequent dislocations, subluxations and instability.
- Musculoskeletal pain including chronic pain, widespread pain and sometimes pre-mature arthritis.
- Skin changes, often soft, velvety or stretchy skin that bruises easily.
- Other symptoms including but not limited to, chronic fatigue, dizziness, gastrointestinal issues, dysautonomia and headaches.
The role of physiotherapy in hypermobile EDS
Physiotherapy plays a key role in the management of hypermobile EDS. Tailored to individual preferences, needs and goals, physiotherapy aims to build joint stability through strengthening and proprioception exercises to reduce chronic pain and injury. Gentle manual therapy such as joint, muscle and nerve mobilisation, joint manipulation, soft tissue massage and trigger point therapy can also be a good adjunct to exercise for reducing pain and helping joint instability. These treatment effects can be prolonged with safe stretching, which your physiotherapist will help you with.
Some pain management tips…
- Apply ice or heat (personal preference)
- Supportive taping or bracing
- Electrotherapy (such as TENS)
References
Brumitt J, Cuddeford T. CURRENT CONCEPTS OF MUSCLE AND TENDON ADAPTATION TO STRENGTH AND CONDITIONING. Int J Sports Phys Ther. 2015 Nov;10(6):748-59. PMID: 26618057; PMCID: PMC4637912.
Kozinc, Ž., & Šarabon, N. (2017). Common Running Overuse Injuries and Prevention. Montenegrin Journal of Sports Science & Medicine, 6(2).